Table 3 Haemo-QoL-A score distributions and comparisons published results
From: Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada
Study cohort young adults | United States Cohort Manco-Johnson Prophylaxis Group [18] | International Cohort Rentz [10] | |
|---|---|---|---|
Age (years) | Mean age23.6 (SD = 2.87) [range 18.4–28.7] | Median age 19.5 [range 14–29] | mean age 38.9 (SD = 14.7) |
Proportion with Severe Haemophilia | 93 % | 100 % | 52 % |
Sample Size | n = 33 | n = 21 | n = 221 |
Total Score | 85.8 | 85.6 | 73.1 |
(9.53) | (10.7) | (16.96) | |
Physical Functioning | 82.1 | 88.4 | 66.8 |
(12.4) | (11.9) | (23.9) | |
Role Functioning | 86.4 | 86.0 | 79.4 |
(10.4) | (10.3) | (17.3) | |
Worry | 82.4 | 85.5 | 73.6 |
(17.1) | (15.3) | (24.2) | |
Consequences of Bleeding | 87.5 | 86.7 | 72.2 |
(10.9) | (9.4) | (21.9) | |
Emotional Impact | 85.1 | 89.8 | 76.9 |
(12.8) | (11.8) | (18.1) | |
Treatment Concerns | 91.1 | 77.5 | 60.1 |
(13.4) | (20.9) | (30.6) |