Skip to main content

Table 3 Haemo-QoL-A score distributions and comparisons published results

From: Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada

  Study cohort young adults United States Cohort Manco-Johnson Prophylaxis Group [18] International Cohort Rentz [10]
Age (years) Mean age23.6 (SD = 2.87) [range 18.4–28.7] Median age 19.5 [range 14–29] mean age 38.9 (SD = 14.7)
Proportion with Severe Haemophilia 93 % 100 % 52 %
Sample Size n = 33 n = 21 n = 221
Total Score 85.8 85.6 73.1
(9.53) (10.7) (16.96)
Physical Functioning 82.1 88.4 66.8
(12.4) (11.9) (23.9)
Role Functioning 86.4 86.0 79.4
(10.4) (10.3) (17.3)
Worry 82.4 85.5 73.6
(17.1) (15.3) (24.2)
Consequences of Bleeding 87.5 86.7 72.2
(10.9) (9.4) (21.9)
Emotional Impact 85.1 89.8 76.9
(12.8) (11.8) (18.1)
Treatment Concerns 91.1 77.5 60.1
(13.4) (20.9) (30.6)