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Table 1 Baseline sample characteristics

From: Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada

 

Study cohort youth

Study cohort young adults

Sample Size

13

33

Ages (years)

Mean = 15.6

Mean = 23.6

SD = 1.4

SD = 2.9

Range: 12.9 to 17.9

Range: 18.4 to 28.7

Proportion with Severe Haemophilia

85 %

97 %

Proportion with a Target Joint

15 %

27 %

Proportion on Prophylaxis

100 %

100 %

Prophylaxis Frequency

Once or Twice a week = 15 %

Once or Twice a week = 18 %

Alternate Days = 54 %

Alternate Days = 42 %

Daily = 31 %

Daily = 39 %

HJHS

Mean = 5.2

Mean = 13.3

SD = 5.6

SD = 8.9

Range: 0 to 17

Range: 0 to 34