From: Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada
Study cohort youth | Study cohort young adults | |
---|---|---|
Sample Size | 13 | 33 |
Ages (years) | Mean = 15.6 | Mean = 23.6 |
SD = 1.4 | SD = 2.9 | |
Range: 12.9 to 17.9 | Range: 18.4 to 28.7 | |
Proportion with Severe Haemophilia | 85 % | 97 % |
Proportion with a Target Joint | 15 % | 27 % |
Proportion on Prophylaxis | 100 % | 100 % |
Prophylaxis Frequency | Once or Twice a week = 15 % | Once or Twice a week = 18 % |
Alternate Days = 54 % | Alternate Days = 42 % | |
Daily = 31 % | Daily = 39 % | |
HJHS | Mean = 5.2 | Mean = 13.3 |
SD = 5.6 | SD = 8.9 | |
Range: 0 to 17 | Range: 0 to 34 |