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Table 1 Patient clinical and demographic information

From: Patient-reported treatment burden of chronic immune thrombocytopenia therapies

  

All patients

 

n

Percentage

Total

589

100%

Demographics

  

Age (Mean (SD))

 

47.74 (14.71)

   18-24

32

5.4%

   25-34

96

16.3%

   35-44

122

20.7%

   45-54

134

22.8%

   55-64

133

22.6%

   65-74

51

8.7%

   75+

21

3.6%

Race/Ethnicity (multiple response)

  

   White, not of Hispanic origin

521

88.5%

   Hispanic

27

4.6%

   Black, not of Hispanic origin

23

3.9%

   Asian or Pacific Islander

12

2.0%

   American Indian/Alaskan Native

8

1.4%

Employment

  

   Employed--Full time

284

48.2%

   Employed--Part time

77

13.1%

   Self-Employed

38

6.5%

   Unemployed

190

32.3%

Patient symptoms and clinical characteristics

  

Wet Bleeds (Nose or mouth bleeds (in past year))

  

   Not at all

317

53.8%

   Once or twice

193

32.8%

   Once a month or up to 12 times

54

9.2%

   More than once a month

25

4.2%

Dry Bleeds (bruising, hematomas, or petechiae (in past year))

  

   Not at all

122

20.7%

   Once or twice

149

25.3%

   Once a month or up to 12 times

132

22.4%

   More than once a month

186

31.6%

  1. Among the patients, 92% (n = 542) had current or past use of CS, 56% (n = 322) IVIg, 36% (n = 209) anti-D, 36% (n = 213) RT, and 39% (n = 227) SPL. Patients reported current or past experience with a mean 2.58 (SD = 1.17) treatment types among the five alternatives. A mean of 3.12 (SD = 1.83) treatments was reported across all treatments listed, including Danazol (17%), cyclophosphamide (8%), vinca alkaloids (7%), azathioprine (6%), and cyclosporine (4%).