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Table 1 Demographics of SCD and caregivers who participated in the community sessions. Fisher’s exact test was used to determine the p-value of differences between the different forums and age groups

From: Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers

  Age less than 15 Age = 15–25 Age older than 25 Caregivers p-value
Sickle Cell Retreat 0 0 1 26 < 0.01
Sickle Cell Disease Association of America 2 9 15 0
Sickle Cell Foundation of Tennessee 1 1 9 0