Table 1 Characterization of SCD patients followed by the Reference Center in the South of Bahia, Brazil
Age (years) | N (%) | Sex | N (%) | Ethnicity | N (%) | Region of Origin | N (%) | |
|---|---|---|---|---|---|---|---|---|
≤ 5 | 36 (18.0) | Female | 104 (52.0) | Caucasian | 13 (6.5) | South Coast | 156 (78.0) | |
6 to 10 | 44 (22.0) | Male | 96 (48.0) | African | 178 (89.0) | Extreme South | 29 (14.5) | |
11 to 15 | 37 (18.5) | Asian | 9 (4.5) | Southwest | 15 (7.5) | |||
16 to 20 | 21 (10.5) | |||||||
21 to 30 | 40 (20.0) | |||||||
≥ 31 | 22 (11.0) | |||||||
Number of siblings with SCD | N (%) | Age at 1st Diagnosis | N (%) | Relatives with SCD | N (%) | Education (by age group) | N (%) | |
0 | 21 (10.5) | ≤ 6 months | 76 (38.0) | None | 100 (50.0) | ≤ 5 | Uneducated or incomplete | 36 (18.0) |
1 | 47 (23.5) | 7 months to 4 years | 50 (25.0) | Father | 4 (2.0) | elementary school | ||
2 | 42 (21.0) | 5 to 9 years | 34 (17.0) | Mother | 3 (1.5) | 6 to 10 | Uneducated or incomplete | 34 (17.0) |
3 | 33 (16.5) | 10 to 14 years | 11 (5.5) | Brother | 63 (31.5) | elementary school | ||
4 or More | 57 (28.5) | 15 to 17 years | 15 (7.5) | Cousin | 22 (11.0) | Elementary school | 10 (5.0) | |
≥ 17 years | 14 (7.0) | Aunt and Uncle | 1 (0.5) | 11 to 15 | Uneducated or incomplete | 24 (12.0) | ||
Nephews | 2 (1.0) | elementary school | ||||||
Not heard | 5 (2.5) | Elementary school | 13 (6.5) | |||||
Inform | ≥ 16 | Uneducated or incomplete | 17 (8.5) | |||||
elementary school | ||||||||
Elementary school | 25 (12.5) | |||||||
High School | 40 (20.0) | |||||||
University | 1 (0.5) | |||||||