From: Generic and disease-specific quality of life among youth and young men with Hemophilia in Canada
Means (standard deviations) | Study Cohort Youth | Study cohort young adults | Study cohort comparative sub-set (selected to match the age range for published Canadian Norms [17]) | Canadian Norms for Males [17] | Mean Difference |
---|---|---|---|---|---|
Ages (years) | 12.9 to 17.9 | 18.4 to 28.7 | 16 to 24.9 | 16 to 24.9 | |
Sample Size | 13 | 33 | 27 | 474 | |
PCS (norm-referenced scoring) | 53.00 | 50.79 | 51.74 | 53.9 | 2.16 |
(5.5) | (6.4) | (6.5) | (6.9) | ||
MCS (norm-referenced scoring) | 52.3 | 50.9 | 51.1 | 49.3 | -1.79 |
(6.8) | (8.8) | (8.6) | (9.7) | ||
Physical Functioning | 90.0 | 87.1 | 87.9 | 93.6 | 5.64* |
(10.4) | (13.2) | (13.7) | (13.3) | ||
Role Physical | 86.1 | 84.1 | 84.5 | 89.9 | 5.41 |
(17.2) | (13.9) | (14.9) | (27.1) | ||
Bodily Pain | 75.9 | 66.2 | 69.2 | 79.1 | 9.9* |
(11.1) | (19.4) | (20.3) | (19.4) | ||
General Health | 82.6 | 75.4 | 79.6 | 78.7 | -0.93 |
(13.6) | (15.5) | (13.9) | (14.7) | ||
Vitality | 71.2 | 64.9 | 65.7 | 64.0 | -1.74 |
(10.4) | (16.4) | (16.9) | (16.5) | ||
Social Functioning | 83.7 | 86.4 | 86.6 | 86.5 | -0.07 |
(16.4) | (12.6) | (14.3) | (18.7) | ||
Role Emotional | 89.7 | 85.1 | 86.7 | 82.7 | -4.03 |
(14.5) | (18.9) | (17.5) | (32.8) | ||
Mental Health | 80.4 | 77.1 | 77.2 | 74.3 | -2.92 |
(9.9) | (15.5) | (15.2) | (16.6) |